Alex was diagnosed with Moya-Moya Syndrome at age 18 months, this condition restricts the blood and oxygen flow to her brain. She suffered through multiple surgeries over the years at Boston Children's Hospital (BCH), the last was in August of 2004. Alex's surgeon at BCH- Dr. Scott, refers to Alex as his "little challenge" because she is a special case.
Dr. Scott recently told mom (Alicia Howlan), that surgery seems not to be the answer, that her arteries are too restricted. Alex suffered with several strokes, a direct cause of this disease.
We learned of Alexandrea's plight in November of 2004. We have stayed close to Alexandrea and her family.
Alex told ACCFCB- "I'm glad I met new friends like you...I thank god for special people in the world each day and god led me to all of you."
To Alex: "You will always be our special angel and we thank god for leading us to you too!"
Visit to Alex's home at Christmas time (2004)
Alex at Boston Children's Hospital Red Sox display case (a big fan).
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