E-mail update from Buddy LaFontaine's mom to President John Smith 09-25-09

Sent: Friday, September 25, 2009 8:51 PM

Subject: Re: Make a Difference Today

"Thank you so much, John,,,,I don't know if we ever told you it was a genetic disease,,,so all 4 kids had to be tested,,,poor Buddy,,,just breaks my heart,,,,as with anything genetic, you don't know to look for it with the first one,,,,by the time he was diagnosed,,,it was just too late,,my second son, Tyler is not out of the woods entirely,,,,as one of the awful aspects of this disease is you can have no symptoms one day,,then crash into kidney failure he next,,but they don't expect that to happen,,,,there is some medical intervention that can be done with him to hopefully hold this thing off,,,,so we are very happy for all our kids,,,,Buddy is doing so very well,,,( and i can't say it enough,,,your help contributed to his recovery so much and still does,,,,you removed such an immeasurable amount of stress for us ) Tyler is ok at this point,,and my youngest 2 don't have the disease,,,,thank God,,,I do know of a family where 3 of their 4 kids have all had combined liver/kidney transplants like Buddy,,,,so we know how lucky we are in so many ways,,,,
I hope that all is well with you,,,and thank you again so much for your kindnesses to us,,,,in words,,and deeds,,,,,
all the best to you, as always,,,
Dee