Albany County Correctional Facility for Children's Benefit Albany NY

AIDEN WAS FINALLY RELEASED FROM HOSPITAL AND IS GOING HOME!

 

 
  
The Albany County Correctional Facility for Children's Benefit is so proud to announce that Aiden Was FINALLY ABLE TO GO HOME TODAY, Monday- March 22, 2010! Aiden spent 117 days in the Pediatric Intensive Care Unit.

ACCFCB would like to extend our sincere best wishes and Congratulations to Aiden, his parents and their loving family, we know this is a very exciting and happy day for all of you! 

Aiden Torres, born with Gastroschesis (Intestines outside of his body) remained in Albany Medical Center's Neonatal Intensive Care Unit since his birth on Thanksgiving, 2009. 

ACCFCB reported on February 18, 2010 that Aiden was "GOING HOME" as early as Monday, February 22, 2010, this was sadly not to be. Aiden had suffered an unfortunate setback during his ever increasing feeding process when his abdomen started to expand and bile had to be pumped from his stomach. Doctor's immediately ordered all mother's nutrients to be stopped and TPN (Total Parenteral Nutrition- supplies all daily nutritional requirements) to be administered.

ACCFCB further extends our sincere appreciation and thanks to Lieutenant James Karam of the Rensselaer County Sheriff's Officefor assisting Aiden's family on behalf of our children's foundation! (Lt. Karam was also instrumental in assisting "Connor Moran" on behalf of ACCFCB as well).

Baby Aiden May FINALLY be Leaving Hospital And Going Home......

  Aiden Torres 

Aiden appears set to Finally go HOME This Monday- March 22, 2010! Aiden will have spent 117 days in the Pediatric Intensive Care Unit.

Aiden, born with Gastroschesis (Intestines outside of his body) has remained in Albany Medical Center's Neonatal Intensive Care Unit since his birth on Thanksgiving, 2009. 

ACCFCB reported on February 18, 2010 that Aiden was GOING HOME as early as Monday, February 22, 2010, this was sadly not to be.

Aiden had suffered an unfortunate setback during his ever increasing feeding process when his abdomen started to expand and bile had to be pumped from his stomach. Doctor's immediately ordered all mother's nutrients to be stopped and TPN (Total Parenteral Nutrition- supplies all daily nutritional requirements) to be administered.

ACCFCB extends our best wishes:To Aiden, his  parents and their loving family, we know this was quite the emotional roller coaster and are pleased at this happy ending for your beautiful baby boy!  

ACCFCB extend our Deep Appreciation and Thanks: To Lieutenant James Karam of the Rensselaer County Sheriff's Office for helping this young family on behalf of our organization! (James was further instrumental in assisting "Connor Moran" on behalf of ACCFCB as well).

Connor Moran, age 18- An Update From Mom.....

 
Connor Moran of Wynantskill age 18

e-mail update from Connor's mom (Laura)-

Dear John Smith

I hope all is well with You and Family. I am sorry I haven't kept in touch with you, we've been very busy.  

I wanted to let you know that Connor is doing well.  About a month ago he started a new diet, "The Maker's Diet".  He can finally be on a diet where he can eat meat!  It is a very healthy diet, and very strict.  He broke his diet after a week, so he was not feeling very well for a couple of days. He's been moving around more and more.  He still uses the wheelchair when we go out, and the crutches full time. He needs to gain more weight in order for him to start walking without the crutches. He is taking a Bible class online, and every Tuesdays the youth group gets together at our home. It is a blessing we found out about this diet, God's prints were all over it. We are all eating better because of it. Connor's stress is a big part of it, so I had to change many things about our lifestyle. It will be a long recovery for Connor, and a lot of work. Only God knows what is ahead of us, but I know that if Connor works at it he will be in great health within a year. He also has to work on his anxiety, and fear of being alone. We have to focus, and stay positive. Connor is such a brave, and strong young man. He is my inspiration!  

I want to give you a big 'THANK YOU".  When we were in a time of need a seed was planted, that was Mr. Karam (Lieutenant James Karam, Rensselaer County Sheriff's Office) who got in touch with You. We are so grateful to you all for what you did for us. It was very overwhelming, and we felt very, very blessed. This is the first time in our lives that someone does something so big, and specially for our Connor. All the people who were involved. The Golf event was a very amazing time, and so meaningful. God bless you all for everything that you do.

 

With all our Sincere Thanks,

 

Laura, Len, Connor and Kirsten

_____________________________________________________________________________________

Connor was diagnosed at age 12 with Crohn's Disease & Osteoporosis. He underwent Bowel Resection Surgery, and had 3.5 feet of bowel removed. Connor was home-schooled due to his limited physical abilities and being severely underweight. He has limited mobility and is easily fatigued. 

ACCFCB met Connor and his family in their home for the first time on Saturday, Dec 1, 2007. ACCFCB has supported Connor and his family to help them get back on stable financial ground. Lieutenant James Karam of the Rensselaer County Sheriff's Office brought Connor to our attention, for which we thank him.

Hunter Sanchez, age 12 of Schodack- Will Undergo More Extensive Surgery

Hunter Sanchez Oct 31, 2008 Capital News 9 Interview

 2006  2007 

 2008  2008

 2010 w/ sister Gabrielle

At the age of 8, Hunter complained of leg pain which doctors diagnosed as Bi-Lateral Legg-Calve Perthes Disease- (a rare disease that causes bone death in the ball of both hips due to a lack of blood flow). He went from being a very active child to confinement in a wheelchair.

Hunter had surgery in January 2007 and spent 5 months recovering @ Sinai Hosp in Baltimore, Maryland. He was finally able to come home in May to face a year long extensive Physical Therapy regiment.

On July 6, 2007, Hunter received the Albany County Correctional Facility for Children's Benefit's "Courage Award" at our 3rd annual "TEED OFF FOR TOT'S" Golf Classic Event. The award highlighted the tremendous courage Hunter displayed during his long ordeal and was well DESERVED!  

The following is an UPDATE from Hunter's mom Noelle (2010):

Hi John (Smith),

The last year has been rough for Hunter with his pain getting worse and worse.

In May 2010 Hunter is scheduled for his 1st of 4 surgeries to take place approx.
over the next three years.

Hunter's femoral head on the right is wide and flat and has outgrown the
acetabulum. His acetabulum has taken on a flat shape also. Not good.
They are going to cut down and resurface the femoral head.
He has no femoral neck on the right and very little on the left.

They are going to move the greater trochanter down and make a femoral neck for
him. 2 screws to reattach the greater trochanter (which come out later) and One
support screw up the new neck they make him, which is permanent .

It's an 8 hour surgery. Much longer than fixators but easier recovery (we pray). 
2-3 weeks (HOPEFULLY) in Baltimore and 3 months recovery at home with Full time
Physical therapy. He will have a brace and crutches.

Without Hunter's 1st fixator surgery in 2007, this one would not be possible.

Hunter was able to play 2 years of baseball and pitched last year.

We were blessed with the Nassau Baseball Assoc. and His coach Brett Doty who
worked with Hunter's Limitations to give him the best playing experience he
could have.

Hunter is OK with all of it. He just wants the pain to go away.
Sorry I couldn't update you with great news but I am certain one day I will
send you an email that says he is all done, mostly pain free and walking well.

>Noelle Sanchez

VIDEO Link- Connor Menneto To Receive Cleveland Clinic's COURAGE AWARD

The Cleveland Clinic recognizes 3 children every year out of the thousands they treat with their Courage Award- This year Connor has won the award! It is the first time someone treated in the pain program will be recognized. He will receive this HUGE honor at a black tie gala in Cleveland in April, 2010. 

Cleveland Clinic: Pain clinic last resort for children

CLEVELAND -- Most of us have experienced physical pain but imagine it being so intense you can hardly move or be touched. That's life for some teenagers at the Cleveland Clinic Pediatric Pain Rehabilitation Program. Click to view Connor's Channel 3 News Interview- Cleveland Clinic 

ACCFCB takes this opportunity to CONGRATULATE Connor, this courage award is absolutely EARNED! Keep up your tremendous effort and please share photos with us of your Courage Award so we can post it here on our website. Sincerely, John Smith- President 

(E-mail Tue 3/02/10 10:32 PM)-    

Hi John (Smith),  Please share with your group Connor's honors. They are a very important part of his story.  Connor finds the courage everyday to get up and live knowing he will be in pain and that the CRPS is spreading but more importantly that he has people that believe he can get beyond that. He knows there are people that believe he is more than his diagnosis. I can not tell you how much it helped him and I do know we had your support. When it comes to illness and children, miracles can happen with the help of caring people.

Thank you

The Menneto Family

 

Connor Suffers with "CRPS (Complex Regional Pain Syndrome), first discovered in the Civil War, is still barely understood. But it's known to come about after multiple injuries to an extremity -- such as the breaks in Connor's leg.

Like the phantom sensations experienced by an amputee, the disease causes the brain to send out pain signals for trauma that doesn't exist. And the pain is far worse than any trauma might be." Times Union Staff Writer ALAN WECHSLER