Alexander "AJ" age 15 months from Latham, NY
AJ was diagnosed with Chiari Malformation, Type 1- a condition where the lower back of the skull is too small or misshaped causing crowding of the brain and pressing it down against the spinal cord. He underwent surgery to make room in his skull and spent the last 2 months of 2011 in the hospital recovering. Doctors have not determined whether there is permanent nerve damage nor the extent.
AJ is currently being fed via a G-Tube. He has a portable ventilator requiring suction due to aspiration. Mom said, 'AJ is always smiling and laughing...Now that he is home, he is getting stronger and bigger every day'
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