Albany County Correctional Facility for Children's Benefit Albany NY

Logan Siciliano, age 1 Doing Well After Open Heart Surgery

Logan Siciliano  

Dad reports- "Surgery is over and all went well. Dr Del Nido (Boston Children's Hospital surgeon) delivered the great news....

Mitral valve is porcine, 23 mm which is size for a teenager so we expect he will not outgrow. Tissue valve may last 8-10 years.

Tricuspid valve required stitching of leaflets to reinforce each other - did not need replacement.

Left atrium had an area of thin, ballooned out tissue which had to be removed.

Logan did great !

He will need time for his lung to reexpand (left side) and for his heart function to improve. They expect to keep him sedated and on a ventilator for at least a few days.

Go Logan!"

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Logan Siciliano was born on January 19, 2011 and diagnosed with Marfan Syndrome (MFS)- a genetic disorder of connective tissue which holds all parts of the body together and helps control growth. MFS affects the heart, blood vessels, bones, joints, eyes, lungs and skin.

Logan was born with leaky heart valves and an enlarged aorta causing congestive heart failure. Logan underwent his first open heart surgery on September 1, 2011 at Boston Children's Hospital to repair 3 valves and replace part of his stretched aorta. Logan is nearsighted and wears glasses.

AJ Ballard, age 1 Receives IPad To Aid In His Motor Skills & Recovery

AJ Ballard receives IPad from ACCF for Children's Benefit

AJ was diagnosed with Chiari Malformation, Type 1- a condition where the lower back of the skull is too small or misshaped causing crowding of the brain and pressing it down against the spinal cord. He underwent surgery to make room in his skull and spent the last 2 months of 2011 in the hospital recovering. Doctors have not determined whether there is permanent nerve damage nor the extent.

AJ is currently being fed via a G-Tube. He has a portable ventilator requiring suction due to aspiration. Mom said, 'AJ is always smiling and laughing...Now that he is home, he is getting stronger and bigger every day'

Ride in Memory of a Fallen Biker to Benefit ACCFCB's Seriously ill Kids

Ride with the Blue Knights NY Chapter VIII Motorcycle Club to support our seriously ill kids at their annual 'Tee Moyer Memorial Ride' t/b held on Saturday September 8, 2012 with registration 9:30am - 11 am at Spitzie's. A pre registration party will be held the night before 7pm - 11pm at the Mill Tavern in Round Lake. BKNY8's $1000 donation from each of their 2010 & 2011 rides were very much appreciated and needed. Thank You BKNY8 for your continued support we couldn't do what we do without you!

Please contact John Scavo @ 518-785-4438 or email [email protected] to participate.

Mom Shares A Beautiful and Courageous Story...Heartfelt

Logan Siciliano's mom, Stephanie shares her story and allows us to 'walk a mile in her shoes'. Very heartfelt and little doubt therapeutic to write. We somehow muster the herculean strength to move mountains for our kids. We thank Stephanie for sharing this with us!

http://marfmom.com/archives/4906