Logan Siciliano, Age 4
On Monday 3/9/2015 Logan heads to Boston Children's Hospital for a cardiac check up and back X Rays to see if the time has come for lengthening the rods supporting his spine. The hope is that surgeons can hold off until the fall so that Logan will have the opportunity to enjoy the upcoming summer without the pain from recovery, extensive physical therapy and an uncomfortable upper body cast. Logan enjoys spending a lot of time in the pool and at the beach and he would be heartbroken if he wasn't able to enjoy those simple pleasures. Imagine a sweaty, itchy cast around your entire upper body in 90 degree weather and what a bummer that would be. Logan's family is keenly aware that the day for surgery is coming and they know he will be in the very best hands at Boston Children's Hospital. If the doctors tell them Monday that they have to schedule surgery then they feel they will get through it, and they will all end up a little stronger when it's done!
Logan is fearless in his attempts to overcome his many physical limitations, yet doctors scare him because he isn't sure if he will be getting shots or have blood drawn. His family is constantly reassuring him that the heart doctor just takes pictures of his heart, the bone doctor takes X Rays and that neither of them will give him shots.
Logan was born on January 19, 2011 diagnosed with Marfan Syndrome (MFS)- a genetic disorder of connective tissue which holds all parts of the body together and helps control growth. MFS affects the heart, blood vessels, bones, joints, eyes, lungs and skin.
Logan was also born with leaky heart valves and an enlarged aorta causing congestive heart failure. Logan underwent open heart surgery on September 1, 2011 at Boston Children's Hospital to repair 3 valves and replace part of his stretched aorta. Logan is nearsighted requiring him to wear glasses.
