Albany County Correctional Facility for Children's Benefit Albany NY

Sophia, Age 2 Battles Rare Condition Requires Constant Care

 

Sophia LeClaire was diagnosed with Congenital Disorder of Glycosylation (CDG)- Rare metabolic disorder, a genetic condition with an as yet undetermined defective gene resulting in metabolism problems and an enzyme deficiency. Sophia is legally blind, developmentally delayed, unable to sit, stand, walk, crawl or use her arms and legs. 

Sophia requires constant attention, care and support from her loving and attentive family as well as caregivers.  

Sophia's condition is very rare and treatment is somewhat of a mystery to medical professionals only complicating her treatment options. Travel plans are being finalized to Boston Children's Hospital (BCH) where genetic testing continues in an effort to determine what type of CDG she suffers from. Mom, Dena explained that 20% of children with CDG expire within the first year of their lives and they count their blessings every day.  

 

Sa'fyre Being Fitted For Her Prosthetic Leg- Super EXCITING!

Sa'fyre Terry, age 6 bravely faced amputation of her left leg which was taken from below the knee in March, 2015 at Shriners Hospital in Boston. She is now excited to begin the process of receiving a prosthetic leg so she can play like the others kids. She is a brave little girl and we are honored to assist during her incredibly brave struggle to recover from her nearly fatal injuries.

Sa'fyre was the only survivor of a ferocious house fire in Schenectady, NY during the early morning hours of May 2, 2013 that claimed the lives of three of her siblings and her father. Finally arriving home from this devastation on February 19, 2014, she has suffered several complications from severe burns that ravaged over 75% of her body.