Albany County Correctional Facility for Children's Benefit Albany NY

ACCFCB's 2007 'Courage Award' Recipient Helps Sick Kids!

Hunter Sanchez age 14, one of ACCFCB's seriously ill children raised $1,000 in support of our other ill children! Hunter presented us with a check for $1,000 at our 8th annual 'Teed off for Tots' golf event on June 29, 2012. We were in awe and extremely grateful to Hunter, his Maple Hill School Committee and the Schodack community for this extraordinary effort and generous contribution!

Gratefully Yours, John R Smith, President 

www.accfcb.org

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At the age of 8, Hunter complained of leg pain which doctors diagnosed as Bi-Lateral Legg-Calve Perthes Disease- (a rare disease that causes bone death in the ball of both hips due to a lack of blood flow). He went from being a very active child to confinement in a wheelchair.

Hunter had surgery in January 2007 and spent 5 months recovering @ Sinai Hosp in Baltimore, Maryland. He was finally able to come home in May and faced a year long extensive Physical Therapy regiment.

Hunter had another surgery on May 11, 2010 and returned home on May 22, 2010 to face several months of bed rest and a year of Physical Therapy.

Hunter received the ACCF for Children's Benefit 2007 "Courage Award" at our 3rd annual "TEED OFF FOR TOT'S" Golf Classic held on July 6, 2007. This award highlighted the tremendous courage Hunter displayed during his long ordeal and was well DESERVED!

Hunter Sanchez, age 13 Update from Baltimore Check Up

 
Hunter pictured with Sister Gabrielle in July 2011at Sinai Hosp in Baltimore, Maryland (Update Below).

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At the age of 8, Hunter complained of leg pain which doctors diagnosed as Bi-Lateral Legg-Calve Perthes Disease- (a rare disease that causes bone death in the ball of both hips due to a lack of blood flow). He went from being a very active child to confinement in a wheelchair.

Hunter had surgery in January 2007 and spent 5 months recovering @ Sinai Hosp in Baltimore, Maryland. He was finally able to come home in May and faced a year long extensive Physical Therapy regiment.

Hunter had another surgery on May 11, 2010 and returned home on May 22, 2010 to face several months of bed rest and a year of Physical Therapy.

Hunter received the ACCF for Children's Benefit 2007 "Courage Award" at our 3rd annual "TEED OFF FOR TOT'S" Golf Classic Event On July 6, 2007. The award highlighted the tremendous courage Hunter displayed during his long ordeal and was well DESERVED!

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7-31-2011 update from mom-

Back from Baltimore. GOOD appointment! Right Hip: Blood flow is good, all healed up, AND the containment issue hasn't changed ,which is BEAUTIFUL! We still need to watch it but it is a good sign that it hasn't changed in 6 months. Need to send xrays in 6 months and if they look good we do not have to go back FOR A YEAR!!!!!!!!!! YE HA!
Left hip still looks awful but it is contained and does not trouble Hunter like the right so that is all that matters. Long may it last!!
Hunter still has 2 screws that need to come out but we are waiting until Hunter cant stand them anymore. Hunter is so over surgery i think his leg will need to be falling off for him to admit they need to come out.

Dr. Standard  wants Hunter to work on taking pain meds more often and PT for at least 9 more months plus our at home PT everyday. Hunter wasn't thrilled with either of these.
Hunter was Filmed and had still pictures taken for Dr. Standard's upcoming conference on Perthes and what can be done. Hunter is an Excellent example.

The real test on Hunter's Hips will be High school. With stairs and 80 minute classes It is A LOT. Hoping for the best and he copes OK with it all. Dr. Standard does not want Hunter in GYM so this will help.

Thanks for all the good wishes and I hope everyone is having a WONDERFUL summer!

Noelle

Hunter Sanchez, Age 13 Showing Hard Work Is Paying Off....

 
Hunter w/ Dr. Standard in Baltimore   Hunter's X-rays

On May 11, 2010, Hunter Sanchez underwent major hip surgery due to a rare bone disease and returned home on May 22, 2010 to face a long recovery, several months of bed rest and a year of Physical Therapy.

On November 30, 2010, Hunter had his follow up appointment at Sinai Hosp in Baltimore, Maryland and mom, Noelle reports very GOOD News-

"All of Hunter's hard work in PT has paid off, he has good blood flow and is healing nicely! Hunter still has a good deal of pain but this just might be the way it is. We don't have to go back until February. Then we will be discussing taking those screws out. We want Hunter to get as much strength as possible before we think about more surgery since it will put him non weight bearing for at least a month. We talked about the left hip a bit but have decided to put that one off for as long as possible as long as Hunter can manage with it. Something to re-evaluate in 2012."

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At the age of 8, Hunter complained of leg pain which doctors diagnosed as Bi-Lateral Legg-Calve Perthes Disease- (a rare disease that causes bone death in the ball of both hips due to a lack of blood flow). He went from being a very active child to confinement in a wheelchair.

Hunter had surgery in January 2007 and spent 5 months recovering @ Sinai Hosp in Baltimore, Maryland. He was finally able to come home in May and faced a year long extensive Physical Therapy regiment.

Hunter had another surgery on May 11, 2010 and returned home on May 22, 2010 to face several months of bed rest and a year of Physical Therapy.

Hunter received the ACCF for Children's Benefit 2007 "Courage Award" at our 3rd annual "TEED OFF FOR TOT'S" Golf Classic Event On July 6, 2007. The award highlighted the tremendous courage Hunter displayed during his long ordeal and was well DESERVED!

UPDATE: Hunter Sanchez age 13 Recovering From Major Hip Surgery.....

Mom and Hunter Sept. 2010 Checkup & Hunter's hip X-rays. 

May 11, 2010 Hunter underwent major hip surgery due to a rare bone disease and returned home on May 22, 2010 to face a long recovery, several months of bed rest and a year of Physical Therapy.

September 28, 2010 Hunter returned home after a check up from Baltimore and mom reports the following-

Hunter's Appt. was OK. Bone is healing nicely. Good Blood flow.(woo hoo!!) Hunter got the Okay to 4 wheel and carefully ride his dirt bike. No jumps or bumps but easy riding he can do. Hunter was VERY pleased with that.

Hunter's right hip is starting to have subluxation (dislocation). Not good. Its the reason for Hunter's Increased pain. Dr. Standard wants him to increase PT and work harder. Gave him an entire new regimen to work on. Plus new pain meds to try.

We re-evaluate in 2 months. If no improvement then we need to talk about more surgery to correct this. So we are hoping PT will be enough to keep the femoral head in place. Such a mixed appointment. Hunter is pleased and stressed. Poor boy. Lots to work on in the next 8 weeks. We are hoping for the best! 

Thanks,
Noelle

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At the age of 8, Hunter complained of leg pain which doctors diagnosed as Bi-Lateral Legg-Calve Perthes Disease- (a rare disease that causes bone death in the ball of both hips due to a lack of blood flow). He went from being a very active child to confinement in a wheelchair.

Hunter previously had surgery in January 2007 and spent 5 months recovering @ Sinai Hosp in Baltimore, Maryland. He was finally able to come home in May and faced a year long extensive Physical Therapy regiment.

Hunter received the ACCF for Children's Benefit 2007 "Courage Award" at our 3rd annual "TEED OFF FOR TOT'S" Golf Classic Event On July 6, 2007. The award highlighted the tremendous courage Hunter displayed during his long ordeal and was well DESERVED!

2006- Hunter in Wheelchair  -   Dad & Hunter @ 2010 Checkup

RECOVERY UPDATE- Hunter Sanchez Age 13, Had Major Hip Surgery In May 2010...

 
Dr. Standard (Baltimore CH) and Hunter Sanchez age 13

On May 11, 2010 Hunter underwent extensive hip surgery and returned HOME on May 22, 2010 with a very LONG recovery ahead- many months of bed rest and then A YEAR of Physical Therapy.

UPDATE from mom August 02, 2010-

Back from Baltimore Checkup:
Hunter had a Great appointment.
He is All done with brace...as soon as the Doctor said that he took it right off
Can swim for Pt and recreationally (with some caution)
Slowly may start to bicycle in the coming weeks
Start weight bearing and gradually move up to full over next four to six weeks as long as there isn't pain
Good blood flow
Bone healing
PHEW!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Go back in 2 months if all is going well.
Hugs

Noelle

 

  
Hunter 2010 Post surgery Baltimore & later home

 

At the age of 8, Hunter complained of leg pain which doctors diagnosed as Bi-Lateral Legg-Calve Perthes Disease- (a rare disease that causes bone death in the ball of both hips due to a lack of blood flow). He went from being a very active child to confinement in a wheelchair.

 

Hunter had surgery in January 2007 and spent 5 months recovering @ Sinai Hosp in Baltimore, Maryland. He was finally able to come home in May to face a year long extensive Physical Therapy regiment.

 

On May 11, 2010 Hunter underwent extensive hip surgery and returned HOME on May 22, 2010 with a very LONG recovery ahead- many months of bed rest and then A YEAR of Physical Therapy.

 

On July 6, 2007, Hunter received the Albany County Correctional Facility for Children's Benefit's ACCFCB's 2007 "Courage Award" Recipient at our 3rd annual "TEED OFF FOR TOT'S" Golf Classic Event. The award highlighted the tremendous courage Hunter displayed during his long ordeal and was well DESERVED!

 

Hunter 2006 

Congratulations Hunter on your Recovery! Your friends @ ACCFCB.